Lupus Australia, Queensland Inc

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What Is Lupus?

SLE (Systemic Lupus Erythematosus), or simply lupus, is a treatable, chronic, inflammatory, auto-immune disease. When you have lupus, your body's defence mechanism - your immune system goes into overdrive and starts to attack certain body organs. Lupus is not contagious or infectious or imagined.

What are the symptoms?

Lupus has many symptoms which take an irregular course of remissions (symptom-free cycles) and flare-ups.
Symptoms may include extreme fatigue, joint and muscle pain, facial rashes, headaches, fever, sun
sensitivity, hair loss, depression, mouth ulcers and eye problems. Like many people with lupus, you may often look perfectly healthy, but feel terrible.

What is the cause?

Until research scientists fully understand how the immune system works, the cause of lupus will remain unknown.However, lupus may be triggered by puberty, exposure to sunlight, menopause, childbirth, trauma, certain medications and viral infection.

What now

Lupus will impact your life and the lives of your family and friends. Lupus is very individual and uncertain. This adds to the stress of coping with and managing this disorder. You need to remain positive, maintain a sense of humour, learn about your illness, participate in medical management and balance your lifestyle. But you are not alone

And the cure

Lupus is a chronic illness - it will never go away. To date, there is no cure for lupus. But this does not mean that you will never be well again, or that the pain will never go away. You will probably require continual medical care and/or medication. Of course, like anyone else, you will need to balance your lifestyle and your diet.

With today's technology - improved diagnostic tests and medication - you can anticipate a near normal life span. However, having lupus means adjusting your lifestyle.

 

 

Updates

New Finding Suggest Novel Avenues to Explore Tast Loss in Autoimmune Diseases

Reduced taste sensitivity is a common symptom of autoimmune diseases such as Sjogren's syndrome and lupus, and it can have a negative impact on a person's nutrition. Taste sensitivity waxes and wanes along with other disease symptoms, but the mechanism by which inflammation could contribute to the loss of taste remains largely unknown. NIDCD-funded researcher Hong Wang, Ph.D., and colleagues at the Monell Chemical Senses Center, in Philadelphia, have used a mouse strain (MRL/Ipr) that models lupus in humans to explore the effects of chronic inflammation on taste tissues. The investigators noted increased levels of inflammation-promoting immune system cells in the tongue tissue of MRL/Ipr mice in association with lower expression levels of markers for Type II taste cells. (Type II taste cells reside within the taste buds and are responsive to sweet, bitter, and umami, or savory, flavors.) Taste buds appeared smaller in the MRL/Ipr mice than in the control mice. In tasting tests, the MRL/Ipr mice showed decreased responsiveness to bitter, sweet, and umami flavors, but responded normally to salty and sour flavors. The research provides new evidence linking autoimmune disease and chronic inflammation to selective changes in the structure and function of taste tissues in the tongue. These findings offer opportunities for further explorations that have the potential to improve nutrition in people with chronic autoimmune disorders.

 

Retrieved April 11, 2011 from http://www.medicalnewstoday.com

 

Lupus Booklet


A nineteen page booklet filled with stories and poems written by people who have lupus

Including a foreword written by Dr Carola G Vinuesa and Dr Matthew Cook, research scientists who are looking at the causes of lupus.

Contact us if you are interested in purchasing this interesting little book


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