Lupus Australia, Queensland Inc

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What Is Lupus?

SLE (Systemic Lupus Erythematosus), or simply lupus, is a treatable, chronic, inflammatory, auto-immune disease. When you have lupus, your body's defence mechanism - your immune system goes into overdrive and starts to attack certain body organs. Lupus is not contagious or infectious or imagined.

What are the symptoms?

Lupus has many symptoms which take an irregular course of remissions (symptom-free cycles) and flare-ups.
Symptoms may include extreme fatigue, joint and muscle pain, facial rashes, headaches, fever, sun
sensitivity, hair loss, depression, mouth ulcers and eye problems. Like many people with lupus, you may often look perfectly healthy, but feel terrible.

What is the cause?

Until research scientists fully understand how the immune system works, the cause of lupus will remain unknown.However, lupus may be triggered by puberty, exposure to sunlight, menopause, childbirth, trauma, certain medications and viral infection.

What now

Lupus will impact your life and the lives of your family and friends. Lupus is very individual and uncertain. This adds to the stress of coping with and managing this disorder. You need to remain positive, maintain a sense of humour, learn about your illness, participate in medical management and balance your lifestyle. But you are not alone

And the cure

Lupus is a chronic illness - it will never go away. To date, there is no cure for lupus. But this does not mean that you will never be well again, or that the pain will never go away. You will probably require continual medical care and/or medication. Of course, like anyone else, you will need to balance your lifestyle and your diet.

With today's technology - improved diagnostic tests and medication - you can anticipate a near normal life span. However, having lupus means adjusting your lifestyle.

 

 

Updates

Why are new lupus drugs needed?

What should lupus patients and their families know about Benlysta? WebMD consulted Eric L. Gredinger, MD, chief of rheumatism and immunology at the University of Miami Miller School of Medicine, FDA briefing documents, and the FDA approval announcement.

 

Officially know as systemic lupus erythematosus (SLE), lupus ia an autoimmune disease. It's relatively common, affecting about one in 1,000 people. But some people with lupus have such mild disease they may never know they have it.

Others have relatively mild disease that can be controlled with current treatments. These include over-the-counter NSAIDs such as ibuprofen, corticosteroids such as prednisone, antimalaria drugs such as hydroxychloroquine, powerful immunosuppressants, and cancer chemotherapies. (Lupus is not caused by malaria and is not a cancer, but malarial drugs and chemotherapies suppress various manifestations of lupus).

Still other patients experience frequent lupus flare-ups and suffer devastating side effects from current treatments. And finally, there are patients with life-threatening lupus, at risk of major organ failure.

In all those cases, the current drugs while not perfect provide a good series of choices,” Greidinger says.

Patients with mild disease may not need treatment, or may be able to keep their symptoms under control with relatively safe antimalaria drugs.

Patients with the most severe disease – including lupus affecting the kidneys or brain – can benefit from more aggressive treatment.

But patients in the middle category are more difficult to treat, Greidinger says. They may not get relief from the safest lupus treatments. But stronger treatments, continued over time, may cause side effects that are worse than a patient's symptoms.

 

 

 

Lupus Booklet


A nineteen page booklet filled with stories and poems written by people who have lupus

Including a foreword written by Dr Carola G Vinuesa and Dr Matthew Cook, research scientists who are looking at the causes of lupus.

Contact us if you are interested in purchasing this interesting little book


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